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Thread: Any new ALS therapies ?

  1. #1 Any new ALS therapies ? 
    pineapple007
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    Default May 23rd, 2023, 04:18 PM
    I'm thinking outside the box for a friend in the USA regarding their recent ALS diagnosis. In the USA there are drugs to treat ALS but because they are not FDA approved they aren't available. Any good suggestions are appreciated.

    Thanks


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    Paleoichneum
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    May 23rd, 2023, 08:42 PM
    travel out of the USA for treatment.

    Also [https://en.wikipedia.org/wiki/ALS#Management] which of these is not available in the USA per the FDA?


    If more of us valued food and cheer and song above hoarded gold, it would be a merrier world. -Thorin Oakenshield

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    pineapple007
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    May 24th, 2023, 04:54 PM
    Quote Originally Posted by Paleoichneum View Post
    travel out of the USA for treatment.

    Also [https://en.wikipedia.org/wiki/ALS#Management] which of these is not available in the USA per the FDA?
    Where to go is a problem. Stem cell therapy is allowed in trial for people meeting certain criteria in the USA.
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    pineapple007
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    May 26th, 2023, 01:47 AM
    Interesting is Neuralink. It just received FDA approval for clinical trials.

    https://www.youtube.com/watch?v=vwGiSYNiTbM
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    Paleoichneum
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    May 26th, 2023, 08:03 PM
    Given the volume of lab animal and monkey deaths and other cruelty involved in Neualink (the Musk unethical and dangerous humanbeing factor not withstanding), I would HIGHLY recommend against going anywhere near it
    If more of us valued food and cheer and song above hoarded gold, it would be a merrier world. -Thorin Oakenshield

    The needs of the many outweigh the need of the few - Spock of Vulcan & Sentinel Prime of Cybertron ---proof that "the needs" are in the eye of the beholder.
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