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Thread: Never thought it would happen to me

  1. #1 Never thought it would happen to me 
    Time Lord zinjanthropos's Avatar
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    In a few minutes I am about to embark on a journey I never thought I would take. I've been told I have a rare form of cancer and today is my first visit to the cancer hospital. So far all I can tell you is that I definitely have a growth under my skin, like an egg if you were to look at it. I've had ultrasound (inconclusive) then an MRI complete with an injection of some sort of blood tracker. My physician upon seeing my MRI , sent it off to a top notch cancer hospital and they in turn returned the verdict that I have a 80-85% chance of having a liposarcoma, a malignant tumor of the fat. About the only good thing I heard was that the tumor is well encapsulated, plus I've experienced no weight loss. That was 3 weeks ago and after dealing with all the stress associated with such news I am ready to go. I've talked with survivors at a support centre and am trying to keep a positive attitude throughout this. If anyone's interested I'll keep the forum updated on my progress, if not for the benefit of someone else in the future but for my own peace of mind.


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  3. #2  
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    Good luck, hope things work out for you.


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    That's terrible news zinj. I wish you all the best. Please keep us updated. Glad to hear it is well incapsulated at least. I presume it has been removed? Is it metastatic?

    PS: Which one of the two original contributors are you? I remember there were two of you posting under the same name before you left us for a while.
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    I'm sorry to hear that. I hope it's the less dangerous kind.
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  6. #5  
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    Just got back from the hospital and am glad to report some good news. The first thing I had to do when I got there was have a chest x-ray. I stayed in the waiting room after that for my turn to see the oncologist. I was originally scheduled for consultation for 3pm but it wasn't until 4:30 that I got in there. During the wait I talked to several cancer patients and although most of them were upbeat, there were plenty of scary personal stories going around.

    I'll preface my comments by telling you that the growth I have has been there for nearly 3 years and has slowly gotten bigger. However it is nothing compared to anything I've seen on the internet. In fact it is just golf ball size (4-5cm). This little tidbit of information actually helped confirm the oncologist's diagnosis that my sarcoma was not high grade cancer and most likely is not cancer at all or it's benign or low grade. Apparently high grade cancer spreads much faster than the thing I've got. Oncologist said high grade tumors can grow to football size in just a couple months. The only thing I haven't had done is a biopsy and I am scheduled for one next week there. Oncologist told me that in all likelihood the biopsy will show there is no real threat at this time, with less than 5% chance of anything more than low grade cancer. They take chest x-rays because malignant high grade cancer is apt to appear in the lungs first and there was no evidence of that.

    So even though I'm not completely out of the woods yet, the prognosis is looking good. In fact I was told that if the tumor or growth is benign then it would be up to me as to whether I have it surgically removed. I really don't want any type of cancer so I will opt to have it taken out.

    Kalster: You know how I like my anonymity so I will just say I'm truly one of those two guys. I was even afraid to post this thread because there are plenty of folks who know me personally that may read this forum.
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  7. #6  
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    Good news so far, then.

    I know the system is different in other countries, but I'm encouraged that your next scheduled activity is a week away. Here, you could find yourself being whisked off for further work the next morning if the professionals were seriously concerned.

    Good luck.
    "Courage is what it takes to stand up and speak; courage is also what it takes to sit down and listen." Winston Churchill
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  8. #7  
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    Quote Originally Posted by adelady View Post
    Good news so far, then.

    I know the system is different in other countries, but I'm encouraged that your next scheduled activity is a week away. Here, you could find yourself being whisked off for further work the next morning if the professionals were seriously concerned.

    Good luck.
    Thanks....it's the same way here. If serious then you get priority. I guess I can look at that as a positive. Oncologist didn't give the impression that what I have needed immediate attention, as in surgery. Gave blood yesterday in preparation for the biopsy, just waiting for the call to go.
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  9. #8  
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    Just got back from a biopsy. I'm finding this whole cancer experience a little bit strange. First I'm told I have it, then I'm told there's a good chance I might not and now I can't figure out why the one thing that could confirm yes or no was done today, 47 days after the day I was told. Anyway this was the first biopsy I've ever endured and to be honest, it was quite painless. They told me there would be 4 core samples taken from the tumor but it ended up being five. This was due to the hardness of the tumor's cap. The doctor told me the tumor or lesion as he was calling it was superficial, directly under the skin, so I took that as good news. My next step is a CT scan one week from yesterday.
    All that belongs to human understanding, in this deep ignorance and obscurity, is to be skeptical, or at least cautious; and not to admit of any hypothesis, whatsoever; much less, of any which is supported by no appearance of probability...Hume
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  10. #9  
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    Okaaaay. So far, so good.

    Good luck for next time.
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    Hope you're doing well
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  12. #11  
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    CT Scan today. Injected with a dye and then into the machine I go. Tells you when to breathe in and hold your breath. They were doing my chest only. This is the last test I will take as next Thursday the oncologist will deliver the results to me. Right now I'm cautiously optimistic. I'll still need surgery to remove the tumor but I'll feel a lot better about that knowing the growth is benign. Thanks to my well wishers, appreciate it.
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  13. #12  
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    More along the so far, so good, path.

    Only another couple of days before you get the next instalment.
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  14. #13  
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    zinj, I missed your initial annoucement and have only just seen the thread. Belatedly I wish you well. Things sound positive. Keep smiling, but don't expect special treatment if I think your talking bollocks on another thread.
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  15. #14  
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    Quote Originally Posted by John Galt View Post
    zinj, I missed your initial annoucement and have only just seen the thread. Belatedly I wish you well. Things sound positive. Keep smiling, but don't expect special treatment if I think your talking bollocks on another thread.
    Thanks. Bollocks never has or never will bother me. The way things have been lately even a resounding Bollocks from you is welcome. Been a roller coaster ride so far, just want it to end favorably.
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    Well today I saw the oncologist again and she had the results of my biopsy and CT scan. How do you spell relief? It's spelled Spindle Cell Lipoma. This is actually what I have, a benign tumor that is commonly misdiagnosed as a Liposarcoma. This is what happened in my case. It means I don't have cancer. Next step is to get the tumor excised (my newfound surgical word) and that will take place near the end of April. I checked it out on the internet and I consider myself lucky that it turned out to be benign. It's been a crazy ride since I was first told I had the cancer but I'll take how it looks like it will end. I have formed a new respect for those people who have cancer and for those who do their best to help the afflicted. I refuse to get angry over the misdiagnosis, those people thought they were doing right and were only trying to save my life. To them I say thanks.
    All that belongs to human understanding, in this deep ignorance and obscurity, is to be skeptical, or at least cautious; and not to admit of any hypothesis, whatsoever; much less, of any which is supported by no appearance of probability...Hume
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  17. #16  
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    Oh good.

    Well, you needed surgery anyway, so the misdiagnosis wasn't leading you anywhere you didn't have to go. Just be glad it wasn't a false negative rather than a false positive. Then you'd really have something to complain about some months or years from now.
    "Courage is what it takes to stand up and speak; courage is also what it takes to sit down and listen." Winston Churchill
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  18. #17  
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    i wonder if hydrogenated oils lead to fat cancer
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  19. #18  
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    i wonder if this software is flawed -if you reply with quote and erase all and type in a message the previous message is deleted i think
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  20. #19  
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    Glad to hear you are all right, Zinj. I'd have it excised as well. Or just chopped out, whichever comes first.




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  21. #20  
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    Thanks for the heads up, Archie. I had no idea.
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  22. #21  
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    Finally...my surgery date is confirmed, April 27. I have to go to pre-op on the 20th. Apparently the operation will be video'd and there will be interns in attendance. Not sure if that's customary but it sounds pretty cool. I was told it will take 2 hours, plus four hours recovery and then up, eventually out the door before the day is done. Everything kicks off at 6 a.m. I wonder if I get to take the tumor home in a jar....that too would be awesome. I'll gladly trade the lump for a scar and no matter what, hope to never have to go through this again.
    All that belongs to human understanding, in this deep ignorance and obscurity, is to be skeptical, or at least cautious; and not to admit of any hypothesis, whatsoever; much less, of any which is supported by no appearance of probability...Hume
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  23. #22  
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    You should ask for a copy of the video: instead of the Director's cut, you get the Surgeon's cut.

    Seriously though, good luck.
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  24. #23  
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    Not sure if you get the tumor in a jar, but i think it's concidered property of the hospital. I wasn't even allowed to keep my gypsum cast. They would like to keep the tumor for further study. Taking DNA/Tissue samples, or maybe yours will even make it on the cover of science weekly.

    I hope the best for you and as i have heard it, besides from the fact that it's cancer, the prognosis couldn't be better.

    Good luck.
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  25. #24  
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    Good luck Zinj. We are all rooting for you.
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  26. #25  
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    Did my Pre-Op today.You're given a list of stations to attend. The list consisted of being weighed & measured, giving up some more blood, ECG, chatting with a Nurse regarding allergies, medications, medical history. etc. then off to see the anesthesiologist and finally another chest x-ray. So I am now ready to go under the knife next Friday. This is all new to me but kind of interesting. The whole operation, recovery and subsequent release from hospital is supposed to take 7-8 hours. Not bad if I do say so. The incision is going to be diagonally across the affected area for about 6" and then T'd off at the ends so the skin can be peeled back like an open book. Cut out the tumor and stitch me up inside and out. I'm going to have to put the golf game on hold for a while. I'm actually looking forward to getting this over with and I got really nervous in the anesthesiologist's office because she had a bad cold. The last thing I need is to have this postponed because I'm sick or carrying a fever.
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  27. #26  
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    Had my surgery today. At the hospital at 6 a.m. and on my way home at noon. First two hours consisted of being fed a saline solution via IV and the rest of the time talking with nurses, the anesthesiologist and my doctor. At 8 o'clock I walked myself into the operating room, was introduced to everyone in there and in a few minutes fast asleep. Woke up at 9:20 in recovery room then eventually moved into same day recovery. Surgeon came by, asked me how things were going etc. They constantly check your vital signs and always asked how much pain I was in. Turned out the excised tumor was the size of a baseball and although I'm a little sore it feels good just knowing it's gone. Have to leave the dressings on for two weeks until I see the oncologist again. Pain I rate at between 3-4 on a scale of 10. I do have a prescription for 60 Percosets, not sure if I'm going to need them but maybe I could become a drug dealer and cash in .

    Anyway this journey is almost over. What started out as something potentially terminal has turned out to have a happy ending. I really feel fortunate to have survived the cancer scare and am more sympathetic towards all those cancer victims not as lucky as I was. I hope I can make the most of this. Thanks for listening.
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  28. #27  
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    Ex. cell. ent.

    For goodness sake, take the damn tablets. Modern nursing and hospital practice tells us that patients with better pain control heal faster.

    You don't have to take all of them. Do take enough to be comfortable most of the time, and especially to allow yourself to sleep easily and deeply. Cut them back in a couple of days if you want to. Take them again if you need them.

    Enough nagging. Take care of yourself. Good luck.
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  29. #28  
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    zijn - great news. Hope your recovery is speedy. Pleased to hear you plan to take positive things from the experience.
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  30. #29  
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    I'd be remiss not to thank all my wellwishers. I've always maintained through all this that everything positive helps.

    Been 72 hours now and I'm feeling pretty good. Feels more like a bad bruise and the pain is really minimal unless I try and move certain ways. I'm not going to push it. With all the tape, padding, gauze and dressings on me I look like Quasimodo, with the lump on my back looking worse than when I had the tumor. It was interesting to observe the medical system as I moved from one stage to another and to be honest the best part was the surgery itself. At least then I didn't know what was happening.
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    I'm pleased to read an updated version of this thread (I saw it when I first joined a couple months ago) and learn that your tumor was benign. I am a survivor of a childhood cancer, and it is not an experience I would wish on anyone. I hope you have a swift and painless recovery from your surgery.
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  32. #31  
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    I saw the surgeon on Thursday, first time since the tumor was excised. At that time all the bandages, pads and tape were finally removed. I got a chance to look at my wound. It actually looks pretty good, no external stitching, they used some type of tape to bind the wound together. I was told there was quite a bit of internal stitching though. I still have a fair sized bump where the tumor once was. This is attributed to fluid filling the cavity left behind. I was told it will eventually disappear over next 2-3 months. I thought I was completely out of the woods but I still need a pathologist report confirming everything OK. One more hill to climb. Oncologist seemed optimistic that everything will be OK but it still is giving me some angst.
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  33. #32  
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    Saw the surgeon again today. The wound healing quite nicely and the fluid in the cavity has for all intents been absorbed back into the body, so for the first time in 3 years my back is looking normal. As I mentioned in the last post, I was still anxious over what the pathology report on the tumor would be. Today iI heard it from the surgeon and I'm Glad to say that pathology confirmed the tumor brnign. That was a huge relief. I'm back to see the surgeon in six weeks and if all well then I will be formally discharged, hopefully never having to return again.

    Thanks to the forum for letting me tell my experiences. When I first started this thread my prognosis was grim to say the least. Somehow it has all turned out marvellous. I know I was lucky. I thought that if I recorded my experiences here that it might benefit others. Little did I suspect there would be a happy ending for me.
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  34. #33  
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    Hooray!!

    Well done you.
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  35. #34  
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    In case anyone is interested I was formally discharged from the Cancer Hospital with a clean bill of health. Hoping I never get to see it from up close again.
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  36. #35  
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    Yaaaaay! Win!
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  37. #36  
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    Great to hear. Now I have to go check myself in -_-"
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  38. #37  
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    I'm glad I got to read all this after everything was said and done. The way it started out sounded terrifying for you. I'm glad everything worked out so well.
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